The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Advancing Hope: FTD and ALS Joint Initiatives

Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral Sclerosis (ALS)? In some cases, neurodegeneration in ALS and FTD is linked to…

The Lived Experience of FTD: Managing Anxiety

The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council. You can learn more about Chris and the other members of the Council…

Two Drugs Selected for Evaluation in Platform Trial for PSP

A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being…

Text: Dear HelpLine - Hospice Care for FTD | Background: A healthcare provider holds someone's hands during an appointment

Dear HelpLine: Hospice Care and FTD

Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How…

Study Evaluates PET Tracer and Explores How PSP Damages Brain Synapses

A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages…

Title of the article, against background of artwork by Dylan Sullivan, "Colored Pencils 1"

Former Judge Gains Artistic Ability after PPA Diagnosis

A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years…

Text: Thank You to Our Volunteers! | Background: A collage of AFTD volunteers

Volunteer Update: Thank You to Our Volunteers!

To all those who dedicate their time and energy with AFTD to making a difference within the FTD community, we thank you! Every hour you invest and every task you…

Text: Advancing Hope - AFTD Attends 2025 American Academy of Neurology Meeting | Background: AFTD Attends 2025 American Academy of Neurology Meeting

Advancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting

Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees,…

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